We are writing today to make our followers aware of a go fund me page setup for a local baby, Seán Curtis, who was born with an extremely rare disease called ‘Alexander's Disease’.
Because Alexander's Disease is so rare, there's no known cure and even the treatment plans are relatively unheard of, but his family has located one doctor in America who specialises in such treatment.
The page has been setup to help raise funds to get Sean to America to receive treatment from Dr Waldman and to make Seán as comfortable as possibly.
If any of our followers are in a position to contribute towards Sean’s gofund me page please follow the link below and donate as much as you can.
